Sunday, March 31, 2013

I t has been awhile since I have written.  I talked about the flexi-touch pump.  It seems to be working!  My arm has gotten smaller and I need a new sleeve to accommodate it.  I have a 2 month evaluation with the O.T. therapist to officially decided if it is worth it.  The insurance will then decide if they will continue to rent the machine.  I just came back from a week in Florida.  Because the machine was bulky, I did not take it with me.  I noticed a difference.  There was definitely more swelling.  It was good to relax and unwind.  Just as this sea shell seems alone on the beach, just remember we are not alone, we are fighting together.

Keep fighting,

Cathy



Saturday, March 2, 2013

Keep Searching

I hope that you trust your doctors since you are putting your life in their hands.  If you are not satisfied with an answer, search for it.  I was getting tired of hearing "post radiation".   Every symptom etc. was labeled "post radiation."  Now that I am 14 months out of radiation, I began to question more why I was so tired.  The oncologist finally sent me to a neologist.  He was given the task to figure out why I have "foggy" times and am so tired.  He thought I needed a sleep study for sleep apnea.  The insurance company wasn't so willing.  I appreciate the fact that he took time to call the insurance company himself and fight for the test.  To me that is a sign of a good Dr.   He did not leave it up to the nurses and paperwork, but did it himself.  Sunday night, I had a sleep study.  It was very interesting.  I sleep all night at the hospital hooked up to sensors.  If I opened my eyes, the nurse in another room knew it and talked to me.  The test showed that I needed a CPAP machine.  This will make sure I get enough oxygen at night.  Hopefully soon I won't be tired and "foggy".

Keep Fighting,

Cathy